Showing posts with label cancer risk. Show all posts
Showing posts with label cancer risk. Show all posts

Wednesday, 8 May 2019

Supplements / Vitamins Are they helpful? May 8, 2019 Chat


We were pleased to have Stacy Kennedy MPH,RD (@stacykennedyrd) join us for this informative chat on vitamins and supplements.  You may find a complete transcript here and analytics here.
Definitions: 
Vitamins - a nutrient that the body needs in small amounts to function and stay healthy. 
Supplement - a substance taken to remedy the deficiencies in a person's diet. 

Here are a few sample responses to our questions:

T1: Can vitamins be helpful to a woman diagnosed with a cancer at each point in her cancer experience - before, during and after treatment? Are there vitamin studies related to gynecologic cancers specifically?

  • vitamins, from foods, are important for women diagnosed with cancer at each point in her experience
  • Amounts & levels needed from food, and in some cases supplements, vary by individual based on many factors
  • connecting to a nutrition expert in oncology is helpful and looking for reliable resources, like danafarber.org/nutrition
  • a plant-based well balanced diet, maintaining a healthy weight and regular exercise are shown to be helpful for many gyn cancers
  • ndividualize your vitamin and supplement use while being treated for cancer. What's right for one person may not be right for another.

T2: Are there vitamins and supplements a gynecologic cancer patient should avoid during treatment - surgery/chemo/radiation/immunotherapy? What about concerns that some vitamins and supplements help cancer grow?

  • yes, there are supplements to avoid during specific treatments. for example, high dose antioxidant supplements during radiation therapy
  • For surgery, many supplements can have blood thinning effects and should be avoided before and after for a period of time. Your MD can advise.
  • Just like with what TO take, what not to take is very individualized. Get help from your cancer pharmacy, gyn/onc, primary doc, nutritionists and/or others to be sure everything that you are taking works with your treatment.
  • It’s also important to avoid high dose antioxidant vitamins such as vitamin A C and E during chemo such as platinum.
  • talking to a pharmacist can insure your medications are not conflicting with your treatments.
  • also individualize what foods you eat. certain fruit like grapefruit can interfere with the metabolism of some drugs. ask!

T3: Which supplements are most helpful for cancer patients and are shown to boost the immune system? Where can reliable information about supplements be found?



T4: Studies have show than Vitamin D is beneficial for colon cancer patients. Is there potential to benefit gynecologic cancer patients as well?


T5: Are there foods patients can eat to get the vitamins they need in place of pills? What are some resources to learn more about nutrition after a cancer diagnosis?


Additional resources shared during the chat may be found below.

Note that there will be no #gyncsm chat in June.  Mark your calendar for our next chat on Wed July 10th at 9pmET. 

Thanks to everyone who has been tweeting using the #gyncsm hashtag.

See you in July!

Dee
#gyncsm Co-founder


RESOURCES

Dana Farber Nutritional Services - https://www.dana-farber.org/for-patients-and-families/care-and-treatment/support-services-and-amenities/nutrition-services/
What Are the Best Vitamins for Cancer Patients - https://blog.dana-farber.org/insight/2011/12/what-are-the-best-vitamins-for-cancer-patients/

Mobile Nutrition and Recipe App  https://www.cancernutrition.org/mobile-nutrition-and-recipe-app/

Conquer Magazine - What Should People With Cancer Eat https://conquer-magazine.com/issues/2019/vol-5-no-2-april-2019/948-what-should-people-with-cancer-eat

ChemoCare - Vitamins and Cancer ... http://chemocare.com/chemotherapy/health-wellness/vitamins-and-cancer.aspx

ASCO Post - Avoiding Antioxidant-Drug Interactions During Cancer Treatment - https://www.ascopost.com/issues/july-25-2014/avoiding-antioxidant-drug-interactions-during-cancer-treatment/

Cancerdotnet - Myths about Cancer and Food Explained  https://www.cancer.net/blog/2016-06/5-myths-about-cancer-and-food-explained-dietitians

American Institute for Cancer Research http://www.aicr.org/patients-survivors/healthy-or-harmful/supplements.html

American Cancer Society - Dietary Supplements - What is Safe? http://www.aicr.org/patients-survivors/healthy-or-harmful/supplements.html

NIH Dietary Supplements https://ods.od.nih.gov/

Sunday, 5 May 2019

May 8, 2019 Chat - Supplements / Vitamins Are they Helpful?


The #gyncsm Community spoke about nutrition in 2015. Since then there have been a number of questions about the helpfulness of vitamins and supplements during treatment and to reduce the risk for cancers and cancer recurrence. This month on May 8, 2019 at 9pm ET (8pm Central, 6pm Pacific) we will chat about Supplements / Vitamins - Are They Helpful? We'll discuss what has shown to be helpful, what to avoid, what helps your immune system, the benefits of vitamin D and pill-based vs. food-based.

Guiding our discussion will be the following Topic Questions (T#):
T1: Can vitamins be helpful to a woman diagnosed with a cancer at each point in her cancer experience - before, during and after treatment? Are there vitamin studies related to gynecologic cancers specifically?

T2: Are there vitamins and supplements a gynecologic cancer patient should avoid during treatment - surgery/chemo/radiation/immunotherapy? What about concerns that some vitamins and supplements help cancer grow?

T3: Which supplements are most helpful for cancer patients and are shown to boost the immune system? Where can reliable information about supplements be found?

T4: Studies have show than Vitamin D is beneficial for colon cancer patients. Is there potential to benefit gynecologic cancer patients as well?

T5: Are there foods patients can eat to get the vitamins they need in place of pills? What are some resources to learn more about nutrition after a cancer diagnosis?

In preparation for the chat, you may be interested in this podcast from Cancer.Net
5 Myths about Cancer and Food, Explained by Dietitians
https://www.cancer.net/blog/2016-06/5-myths-about-cancer-and-food-explained-dietitians

May 8th is also World Ovarian Cancer Day.

You may find more information about the day at https://ovariancancerday.org/

We hope you can join us! 

Dee
#gyncsm Co-founder

Wednesday, 12 July 2017

What's on your Mind? #gyncsm Open Mic Night -July 12, 2017


We didn't have a set series of topic questions for this month's chat but rather allowed our participants to share what was on their minds. We had nineteen participants and over 1.4M impressions. You may find more analytics from Symplur here.

The hour's discussion revolved around these main areas:

Emotional support of women after treatment
  • I'm struggling in post treatment life. Unknowns, grief, plus effects from chemo, rads. :/
  • Post-treatment is really tough for so many people. It's tough to go from the intensity of treatment to the uncertainty of after. 
A petition to make July Sarcoma Awareness Month which led to a discussion of - What is sarcoma? Which are gynecologic?

    • Via @suziesiegel Sarcoma is a cancer of connective tissues. The main types of gyn sarcoma are leiomyosarcoma ,low- & high-grade endometrial stromal sarcoma, & undifferentiated uterine sarcoma. Some include carcinosarcoma
    • Risk factors include exposure to radiation & use of Tamoxifen, plus genetic issues such as Li-Fraumeni Syndrome

    Educating the public about the importance of HPV vaccination
    • Caleb's Feet Foundation http://www.calebsfeetfoundation.org/ brings information about cervical cancer and the HPV vaccination to the community. 
    • studies show pediatricians have a huge influence on whether kids get vaccinated - parents do listen to doc rec
    • good to focus on doc's and then community influencers - churches, centers
    • The @GlobalGenes site has some amazing free toolkits for health advocates. Can also check out blogs from @JBBC re: health marketing 
    • HPV vaccination could reduce global deaths from #cervicalcancer by as much as two-thirds
    Support for women cancer researchers 
    • I really want to (1 day) discuss the lack of funding 4 female researchers, tasked w/ post BrCa Dx research
    • Issues affecting women's health still does receive equitable share in research dollars. It's time that changes
    • Awarding rates 4 female applicants (14.9%) are systematically lower than those for male applicants (17.7%) 
    The science behind the connection between genetic mutations (other than BRCA) and how they may raise the risk of  Breast, Ovarian Color Cancer 
    • I'm in a FB group for CHEK2 and many previvors reporting getting ovaries out though science isn't there yet on that.
    • CHEK2 is the name of a gene...when there is an inherited change (mutation) in CHEK2 = some increased risk for specific cancers
    • Risks to removing ovaries in these young women-->early menopause w/o known cancer risk reduction benefit

    You may find the complete chat transcript here.

    Please scroll down for Resources mentioned during the chat.

    Remember you can always join our discussion on the Smart Patients Platform. (https://www.smartpatients.com/partners/gyncsm )

    Be sure to join us next month on Wednesday August 9, 2017 at 9pm ET | 8pmCT | 6pmPT  as we discuss "You never heard of Primary Peritoneal Cancer or GTDisease?".

    Remember to tweet things of interest to our community by using the #gyncsm hashtag.

    See you in August!

    Dee
    #gyncsm Co-founder

    RESOURCES:

    Petition to make July Sarcoma Awareness Month
    https://petitions.whitehouse.gov/petition/officially-designate-july-sarcoma-awareness-month

    Calebs Feet Foundation
    http://www.calebsfeetfoundation.org/

    Magenta Study Genetic testing study at MD Anderson
    https://magenta.mdanderson.org/magenta_mobile/index.html

    Sex Bias in Surgical Research
    http://www.physiciansweekly.com/sex-bias-in-surgical-research/

    @nccn guidelines for "Hereditary Colorectal Cancer"
    https://www.nccn.org/about/news/ebulletin/ebulletindetail.aspx?ebulletinid=294

    Supplements / Vitamins Are they helpful? May 8, 2019 Chat

    We were pleased to have Stacy Kennedy MPH,RD (@stacykennedyrd) join us for this informative chat on vitamins and supplements.  You may find ...