Showing posts with label gyn cancers. Show all posts
Showing posts with label gyn cancers. Show all posts

Wednesday, 11 April 2018

SGO Annual Meeting Research Review and Ask the Doc April 2018

Twenty-four participants shared what they had learned at the SGO Annual Meeting or asked questions about research presented at the meeting during this month's #gyncsm chat. You may find more analytics here. You may find a transcript from the chat here.

We covered a number of different research areas from treatments to survivorship to funding for research.

T1: What were the results of the study comparing minimally invasive surgery (MIS) w/ radical hysterectomy in early cervical cancer. Will the results change practice?

  • "Disease-free survival following minimally invasive procedures significantly lagged behind radical hysterectomies done by open laparotomy," -Pedro T. Ramirez, MD. I found this fascinating.
    • some suggested uterine manipulator use (not assessed in the study), also discussed immature data, early stopping.
    • Any reasons would be speculation. But I think we get bigger tissue margins with open surgery
    • data safety monitoring committee (filled with GYN ONCS) said the study should be stopped
T2: Several studies used targeted therapies to treat #ovariancancer - Which results stood out for you? Were side effects critical in any of the studies?
  • The #PARPi combinations are very exciting - responses and improved outcomes regardless of #BRCA status are encouraging
  • From our Scientific Director, Dr. Deb Zajchowski, “Exciting preliminary results for PARP inhibitors combined with immune checkpoint inhibitors — particularly in platinum-resistant patients.” (@ClearityFnd) 
T3: Which studies presented at the meeting will impact treatment of women with #endometrialcancer #uterinecancer #sarcoma?

  • The combo of everolimus & letrozole was quite successful in #endometrialcancer - this is the 2nd study to demonstrate this
  • Excited re our study (in rodents) of everolimus-eluting IUD pres by @JDottinoMD - could allow pts to avoid surgery in endo ca


  • My friend Matt Anderson, MD, PhD, presented on the genomic profiling of #uterine #leiomyosarcoma from The Cancer Genome Atlas as well as his own lab in Baylor. Data from @ALazarMDPhD was included. This is bigly important for us
  • I was not at SGO but results from the phase 2 trial looking at carbo/taxol vs carbo/tax + trastuzimab (herceptin) in uterine serous CA with Her2/neu overexpression were presented. Improved PFS w/addition of herceptin.
    • Agree... exciting abstract. Several pre-analytical issues that can affect Her2 testing results which will be important to consider for the future
T4: What research on palliative care and survivorship do you think will impact patients lives the most - or that survivors should ask their gyn/onc's about?

  • There was a study that finally measured and estimated rates of post op lymphedema which were much higher than anticipated. If we can measure it we can look for ways to reduce it. 
  •  Overall, I think it has been great to see an increase each year in survivorship studies and talk of long-term care planning and navigators/coordinators. Patients living longer and more emphasis on support.
T5: Once again studies showed less gyn cancer clinical trials and lower funding for gyn cancer research. What suggestions were made to increase enrollment and funding?
  • We MUST advocate for gynecologic cancer funding - write your Congressman and tell them that this funding must be INCREASED!!
  • the photo in this tweet shows how great the need is via @ShannonWestin
  • Outcomes are better for minorities who have access to #clinicaltrials - we need funding to ensure these trials are available 
    • I thought this was an important study. #clinicaltrials are an important part of cancer care. Many in general population still think trials are last resort and consider them "experimental" in a very negative risky way.
  • From our Scientific Director, Dr. Deb Zajchowski, “We need more funding. We also need to get the word out to enroll in the many clinical trials that are already available. There are more than 300 #clinicaltrials that #ovariancancer patients can enter.”
We have several questions/thoughts out there - feel free to now add any additional tweets re: the latest gynecologic cancer research.
  • Here is a link to a study reported at SGO on a vaccine to prevent recurrence in OC https://t.co/phQx2osDcN
  • Can you please tell us a little more about check point inhibitors and what that they’re used for in regards to #Lynchsyndrome cancers
    • Right now - they are FDA approved for any tumor that has MSI (microsatellite instability) - that includes Lynch Syndrome assoc tumors
    • Essentially the MMR in LS makes the cells more susceptible to attack by the immune cells. The checkpoint inhibitors allow the immune system to be more effective.
  • Still on #uterine #leiomyosarcoma: I'm glad the #sarcoma med oncs talked about the many lines of chemo -- I can think of at least 6 -- they might give. Some gyn oncs offer fewer
  • I was very surprised that chemo for early stage endometrial Cancer didn’t improve outcomes. Especially after last years ASCO when it was discussed that it may replace radiation.
  • Great video to share (from SGO) on clinical trial basics! https://t.co/UWjBqxQ584
  • There was a study that finally measured and estimated rates of post op lymphedema which were much higher than anticipate…
Additional resources mentioned during the chat may be found below. 

Patients and caregivers are invited to continue our discussion on the Smart Patients platform at  https://www.smartpatients.com/partners/gyncsm

Join us next month on Wednesday May 9,2018 at 9pm ET for our chat on Palliative Care - When and Why? with guest Christian Sinclair @ctsinclair (#hpm). 

See you then, 

Dee
#gyncsm Co-founder


Resources:


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Friday, 6 April 2018

April 11, 2018 Chat - SGO Annual Meeting Research Review and Ask the Doc



Part of our mission as a community for those impacted by gynecologic cancers is to inform and educate our followers regarding new developments in disease screening, treatment and survivorship.

A number of those developments were presented as research studies and practice innovations during the SGO Annual Meeting in New Orleans in March. This 49th Annual Meeting drew over 2500 participants including gynecologic oncologists, oncologists, radiologists, genetic counselors, oncology nurses and patient advocates. The #gyncsm community will discuss research projects and trial results presented at this meeting during our monthly chat on April 11, 2018 at 9pm ET (8pm CT, 6pm PT).

Join us as we cover a variety of research topics including answering questions such as:

What is the impact minimally invasive surgery has had on survival of women diagnosed with early stage cervical cancer? 

What is the latest news on the use of targeted therapies (niraparib, pemrolizumab, Olaparib, durvalumab) in treating ovarian cancer?

What impact could Phase I trial of Vigil® vaccine personalized engineered autologous tumor cells (EATC) have on preventing recurrence in women with ovarian cancer ?

What is the role of palliative care and lay navigators in treating and supporting gyn cancer survivors ?

What is the impact of chemotherapy and radiotherapy on endometrial cancer survival? 

How can we improve funding for gyn cancer research?

What is the impact of participation in clinical trials on minority patients? 

During the chat we will open the discussion to questions participants have for our health care professionals.

Check the SGO Facebook page (https://www.facebook.com/SGO.org/), their Twitter account (@SGO_org and #SGOmtg), or their website (https://www.sgo.org/education/annual-meeting-on-womens-cancer/annual-meeting-media-coverage-3/) for more meeting coverage and potential topics of interest.

We look forward to having you join us.

Dee
#gyncsm co-moderator
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Wednesday, 8 March 2017

Gyn Cancer Health Disparities Chat -March 8th, International Womens Day

Today, March 8th, International Womens Day, we chatted about Gyn Cancer Health Disparities. We were pleased to have a number of new participants join our community for this chat. We had twenty-six participants and over 1.8 million impressions. You may find more analytics here.

For our discussion we used the NCI definition of cancer health disparities "adverse differences in cancer incidence (new cases), cancer prevalence (all existing cases), cancer death (mortality), cancer survivorship, and burden of cancer or related health conditions that exist among specific population groups in the United States. "

Below, please find a sample of the responses to our questions. To read the full transcript please visit this page on Symplur.

T1: What are some of the factors that contribute to cancer health disparities?

  • Lack of access to regular screenings puts underserved groups at a higher risk for developing cancer-related malignancies
  • Medical "literacy." How close you live to healthcare, especially great healthcare, and how willing you are to go there. Also income, health insurance, and how good that insurance is
  • There are historic factors, race, socio-economic, edu, & access, but there's also the not talked about, systemic & provider,
  • Poverty, isolation, lower socioeconomic status, race, ethnicity, lack of insurance, disenfranchised, mental illness
  • Racial/ethnic differences, genetic factors, rural-urban status--both cultural norms spatial access concerns--, socioeconomics
  • Poverty, socioeconomic status, poor education, mistrust of medical profession (warranted in some groups

T2: What are some of the effects of health disparities you see in the experience of gyn cancer diagnosis, treatment, and beyond? 

  • So many ways that disparities rear their ugly heads- delayed diagnosis, inadequate care, inadequate access to supportive care
  • In poorer comms, est 24% of providers admit they don't even discuss CATs or survivorship w/ minorities
  • With cervical cancer and precancer, access to screening and follow-up! when something found definitely impacted by disparities
  • Studies have shown <50% of women w/ ovarian cancer meeting genetic testing criteria, are referred for genetics + differences by race
  • Some women--like those in rural areas-- sometimes don't get regular pap smears leading to later stage at dx and poorer outcomes 
  • Health disparities, particularly with access, results in fewer minorities participating in #clinicaltrials
  • Much of research blames patient Social Determinants Of Health 4 disparities but lack of culturally-appropriate & buy-in providers is definitely a factor


T3: Which populations are most affected by these cancer disparities? What are some groups and resources addressing the issues?

  • Health disparities also exist among LGBT population - summary article by G. Quinn at Moffitt: https://t.co/5eD2xDBk4a
  • Recent disparities data shows African American women as 40% more likely to develop #cervicalcancer
  • Risk for health disparity= anyone! Gyn cancers can be rare, and not all health care systems are created equally knowledgeable.
  • African American women are disproportionately affected by cancer disparities. Esp rates of increase
  • The recent re-adjustment on cervical cancer stats showed disparity greater than thought for African American and Hispanic women 
  • There are also biological factors contributing to disparities in cancer #uterinecancer p53 & USC 

T4: What role does past research play in how disparities arise? What role does future research play in addressing disparities? 

  • Great opportunity to reduce disparities through CBPR and community engaged efforts in addtion to NGOs, NCI, and other orgs
  • Cancer research already limited for women. Diversity within the women studied is a barrier.
  • Researchers should make intentional effort to include diverse populations in studies,not just the patients conveniently available
  • It is on the investigator to include underserved groups - it can't just be a "convenience sample"
  • For historic data to play a role in epidemiology research, data has to be actionable. We need better analyst and data scientist 
  • @SGO_org is launching a campaign around #Trials4GynCancerNow Check the #gyncsm blog heading into next week to support
  • Henrietta Lacks! Highlighting past research transgressions can,hopefully, reduce future disparities, improve trust in research
  • The #CAPfoundation is trying to help with screening in populations underserved populations https://t.co/DpeOQpr867 
  • Researchers can also study ways to change or reduce cancer prevention, diagnosis & tx disparities to help prevent future cancers
  • @mdandersonnews has a department that focuses on how to increase minority involvement in clinical trials and research studies 

T5: How can we work together to address and reduce gyn cancer health disparities in our own communities and beyond?

  • As a @GeneticCouns, while only one person, I help underserved women access counseling and testing
  • continue to raise awareness so that increased funds can be directed toward this issue
  • We know patients of gyn oncs better outcomes. Train more gyn oncs for underserved communities
  • 5 Work to encourage funding 4 GynCa programs that support SDOH initiatives. Insist disparity disruptors get funded
  • Promote #clinicaltrial awareness - Less than 2% of NCI studies have enough minorities to meet NIH goals
  •  Increased collaboration in academia and beyond --partner instead of compete for research/outreach $-->synergistic research etc
  • The @C3Prize seeks answers to these cancer treatment challenges annually. Collaborate on a project. Get it funded.
  • partnering with others who are passionate, like @ShewithLynch to raise awareness of disparities in hereditary cancer
  • hopefully support for physicians to provide telemed might move the needle in that direction to ⬆ access
  • working on a government and health policy level can help reduce health disparities... healthcare in flux=opportunity to improve

We ended out chat as we always do with Today I Learned. Some of today's thoughts were:

  • Final thought. Be brave enough to discuss disparities in professional health comms. Our greatest resource is our resolve to "care"
  • TIL that our community= passionate re: eliminating gyn cancer disparities! We can join together to raise awareness & promote change
  • TIL health Disparities are deep within the fabric of of health care and will require education and active reform. 
  • TIL: The complexity of health disparities is great - but the passion to eliminate these disparities exists and will drive us forward
Please scroll down to find the links to topic resources shared during this chat.

Remember you can always continue the conversation on the Smart Patients Platform ( https://www.smartpatients.com/partners/gyncsm  ).

The SGO Meeting (#SGOMtg) takes place from March 12-15. @SGO_org is launching a campaign around #Trials4GynCancerNow. Check the #gyncsm blog heading into next week to support this effort.

We hope you will join us on April 12, 2017 as we discuss research results reported on at the SGO meeting during our SGO Research Review and ASK the Docs Chat.

See you then.

Dee
#gyncsm Co-Founder


RESOURCES

NCI Cancer Health Disparities Fact Sheet (including cervical cancer overview)
https://www.cancer.gov/about-nci/organization/crchd/cancer-health-disparities-fact-sheet

Approaching Health Disparities From a Population Perspective: The National Institutes of Health Centers for Population Health and Health Disparities https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2509592/
Disparities in Gynecological Malignancies https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761838/

Racial Disparities in Cervical Cancer, Worse Than We Thought http://onlinelibrary.wiley.com/doi/10.1002/cncr.30501/full

SGO Taskforce Report on Gyn Cancer Disparities https://www.sgo.org/wp-content/uploads/2014/05/Collins-et-al.pdf

CDC Health Disparities and Inequality reports https://www.cdc.gov/minorityhealth/chdireport.html

Cancer and Lesbian, Gay, Bisexual, Transgender/Transsexual, and Queer/Questioning Populations (LGBTQ) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4609168/

National LGBT Cancer Network @cancerLGBT http://cancer-network.org/
Society of Gynecologic Oncology @SGO_org
National Society of Genetic Counselors @GeneticCouns
@pinkredribbon
http://thelancet.com/series/womens-cancers

NY Times: Wider gap in cervical cancer deaths https://www.nytimes.com/2017/01/23/health/cervical-cancer-united-states-death-toll.html?smid=tw-nytimes&smtyp=cur&_r=2

Cancer Mortality in the Mississippi Delta Region: Descriptive Epidemiology and Needed Future Research and Interventions http://muse.jhu.edu/article/648763

CAP Foundation's "See, Test & Treat" partners with Day of the Latina Woman program in Houston https://www.youtube.com/watch?v=7wysxxdmUAM&feature=youtu.be

Participation in Cancer Clinical Trials - Race-, Sex-, and Age-Based Disparities http://jamanetwork.com/journals/jama/fullarticle/198896

Diversity in Clinical and Biomedical Research: A Promise Yet to Be Fulfilled http://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001918

NCI launches study of African-American cancer survivors https://www.nih.gov/news-events/news-releases/nci-launches-study-african-american-cancer-survivors

Does equal treatment yield equal outcomes? The impact of race on survival in epithelial ovarian cancerhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC2612941/

Opportunities and Challenges in Cancer Health Disparities Research
https://www.cancer.gov/research/areas/disparities

In Cancer Trials, Minorities Face Extra Hurdles
https://www.nytimes.com/2016/12/23/health/cancer-trials-immunotherapy.html?_r=1

#SGOMtg
Abstracts https://www.sgo.org/wp-content/uploads/2016/12/SGO-AM17-abstract_titles.pdf
Late-abstracts https://www.sgo.org/education/annual-meeting-on-womens-cancer/annual-meeting-late-breaking-abstracts/
General info https://www.sgo.org/education/annual-meeting-on-womens-cancer/


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Friday, 3 March 2017

March 8, 2017 - Gyn Cancer Health Disparities



Healthcare disparities can effect various populations in the U.S. due to a number of reasons - economic, cultural, racial, geographic, age or gender. The National Cancer Institute (NCI) defines cancer health disparities as "adverse differences in cancer incidence (new cases), cancer prevalence (all existing cases), cancer death (mortality), cancer survivorship, and burden of cancer or related health conditions that exist among specific population groups in the United States." Studies have shown that disparities in diagnosis, treatment, access and clinical trial participation impact the lives of women diagnosed with a gynecologic cancer. During this month's #gyncsm chat we will discuss Gynecologic Cancer Health Disparities and ways to reduce them.

Please join us as we discuss this issue using these topic questions:

T1: What are some of the factors that contribute to cancer health disparities?

T2: What are some of the effects of health disparities you see in the experience of gyn cancer diagnosis, treatment, and beyond? 

T3: Which populations are most affected by these cancer disparities? What are some groups and resources addressing the issues?

T4: What role does past research play in how disparities arise? What role does future research play in addressing disparities? 

T5: How can we work together to address and reduce gyn cancer health disparities in our own communities and beyond?


Check this NCI page ( https://www.cancer.gov/about-nci/organization/crchd/cancer-health-disparities-fact-sheet) for more information on Cancer Health Disparities.

See you on March 8th, which is also International Women's Day!
Check here to see the chat time in your local time zone.


New to tweetchats? See:


Dee
#gyncsm Co-Founder
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Wednesday, 14 December 2016

Getting Involved in Research Advocacy - Dec 14th Chat

We ended this year of chats by discussing Research Advocacy. We were delighted to have Elda Railey (@RANAdvocate), Research Advocacy Network, join us as our guest. The Research Advocacy Network's mission is "to develop a network of advocates and researchers who influence cancer research-from initial concept to patient care delivery-through collaboration, education and mutual support." Among our forty-three participants were a number of cancer research advocates. You may read the transcript here and additional analytics may be found here.

Below is a sampling of the responses we received to our five topic questions.

T1: Beyond enrolling in clinical trials, what are some of the ways people can get involved with cancer research? 
RAN Slide of Opportunities for Research Advocates



T2: How can patients and advocates keep up with research? What resources are out there to help us better understand the science?







T3: What does being a "research advocate" involve? How has this role changed as overall patient influence has grown?






T4: How can people start to get involved with grant review, clinical trials design, research dissemination, and/or conferences?






T5: What are some tips when it comes to reaching out to Congress about cancer research? What has shown to be effective?





Remember if you are a patient or caregiver you can continue this conversation on the Smart Patients platform at https://www.smartpatients.com/gyncsm.


The next #gyncsm chat will be a joint chat with #mayacc on Wednesday, January 11 at 9pmET. Our topic will be "Young Adults: Life Following a Cancer Diagnosis."

Happy Holidays!
Happy New Year!


Dee
@gyncsm Co-Founder



RESOURCES

Research Advocacy Network : General Resources for research advocates
http://researchadvocacy.org/general-resources
http://researchadvocacy.org/advocate-institute

What is a Cancer Research Advocate via @CancerDotNet http://www.cancer.net/blog/2016-12/what-cancer-research-advocate

Resource | Being A Cancer Advocate via @CancerDotNet http://www.cancer.net/research-and-advocacy/patient-advocates/being-cancer-advocate 

@theNCI has a great Research Advocacy 101 video
https://www.cancer.gov/about-nci/organization/oar/research-advocacy/research-advocacy-101

8 Tips on Gaining Access to Journal Articles via @medivizor https://medivizor.com/blog/2014/12/18/8-tips-gaining-access-to-journal-articles/

scientist - survivor program offered by @AACR http://www.aacr.org/AdvocacyPolicy/SurvivorPatientAdvocacy/Pages/scientistharr;survivor-program___403E94.aspx#.WD83COErKi5

OCRFA Advocate Leader Program https://ocrfa.org/advocacy/advocate-leaders/
OCRFA Advocacy Action Alerts https://ocrfa.org/advocacy/how-you-can-help/

@NOCC_National calendar has events nationwide: https://t.co/wMkCaD09mb

PCORI peer reviewer http://www.sciencesupport.org/PCORIpeer/start/index.cfm
PCORI additional info:
http://www.pcori.org/research-results/research-dissemination-and-implementation
http://www.pcori.org/blog/how-cancer-survivors-make-difference-pcori

Sarcoma Clinical Trials http://www.curesarcoma.org/patient-resources/sarcoma-clinical-trials/

@GlobalGenes toolkits: https://globalgenes.org/toolkits/from-molecules-to-medicines-how-patients-can-share-their-voices-throughout-the-drug-development-process/introduction/
and https://globalgenes.org/toolkits/bringing-rare-disease-to-capitol-hill-advocating-for-your-cause/background-information/

Genetic Alliance Advocacy http://www.geneticalliance.org/advocacy

Welcome your new research partner: Patients https://blogs.biomedcentral.com/on-medicine/2016/12/09/welcome-your-new-research-partner-patients/

Former Rep. Gingrey's recent article on Ovarian Cancer Research http://thehill.com/blogs/congress-blog/healthcare/309680-with-no-screening-test-available-research-and-awareness-key-to

Rare Disease Week on Capitol Hill http://rareadvocates.org/rdw/

Guest column: Congress should support cancer research http://www.theadvocate.com/baton_rouge/opinion/article_3dc1fbf8-b00f-11e6-8127-9768bdfdcccd.html

@CureForward Webinar: Precision medicine and clinical trials for #ovariancancer. https://www.cureforward.com/norma-leah-ovarian-cancer-initiative/

https://clinicaltrials.gov/
https://ocrfa.org/patients/clinical-trials/

Article | Patients Attending Medical Conferences: What’s Happening? https://medivizor.com/blog/2015/05/21/patients-attending-medical-conferences-patients-included/

https://patientsincluded.org/conferences/

NCI: How You Can Help Medical Research: Donating Your Blood, Tissue, and Other Samples https://www.cancer.gov/publications/patient-education/help-research-donate-tissue
  
Research news sources: @HealthNewsRevu @medivizor @PubMedHealth @Medscape  @cancernetwrk @ascopost @cochraneconsumr
 
Other resources mentioned: @patientslikeme @smart_patients @researchmatch @cureforward @ResearchAmerica @UMR4NIH @ConquerCancerFd @RareAdvocates @EveryLifeOrg
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Wednesday, 13 January 2016

January 13, 2016 Caring for the Caregiver Chat

The topic of the first chat of 2016 was Caring for the Caregiver. In addition to our health care moderators and our mental health moderator we were joined by Denise Brown, @caregiving, from CareGiving.com.  

We had 42 participants, 663 tweets and over 4 million impressions. Additional analytics may be found here. You may find the transcript here.

For this chat, "caregivers" refers to the unpaid loved ones caring for someone diagnosed with a GYN cancer / serious illness. Below is a sampling of responses to our questions.

T1: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role?
  • It's important to ask for and receive all the help you can. Caregiving is hard.
  • Communication with health care pros and family members is critical--ask questions, share concerns, be open to feedback
  • pencil in breaks, get back up - don't feel guilty about You time - hard to do but helpful

T2: Being a caregiver 24/7 is draining. What have you done to prevent “burn-out” -  for yourself or your loved one?
  • Find the thing that helps you release, whatever it is. Exercise, meditation, hobbies. Remember to take time for you
  • Have a support system that you trust--to whom you speak honestly about your feelings. Bottling up adds to burnout. 
  • experiment with different options - meditation, yoga, crafts, vegging out - find what is right for you to relax and recharge
  • Have a "Job Jar" list ready so you can take advantage of any offers to help. More help = less burnout.

T3: Caregivers-What do you wish your loved one spoke to you about? Survivors-Why is it difficult for you to talk to your caregiver?
  • I think if pt/caregiver can touch on @caregiving's point about fear of being abandoned, that's key
  • wish patients would share their fears more--sometimes talking about it helps both parties get "on the same page"
  • I think everyone wants an honest conversation about the end and the courage to begin and revisit it as often as possible. 

T4A: Caregivers "wear many hats". What are some of those roles? Which seem to be the most challenging?
  • My husband was my chauffeur, chef, insurance ombudsman, and advocate
  • Family caregivers are cooks, drivers, med and wound care managers, appointment schedulers, keepers of the stories.
  • An ear to listen; a shoulder to cry on; a heart to understand
  • The toughest role I see caregivers play is the one of a person forced to watch someone they love suffer.

T4B: What are some tips and tools for keeping everything coordinated - healthcare, house, family, etc.?
  • Sites to ease keeping everyone informed and coordinated: @rallyhood @CaringBridge @LotsaHelping @tyzenetworks
  • In my family, we share a Google calendar to track appointments and divvy up responsibilities.
  • I love the "cancer binder" concept. Also the virtual iterations of that. And willingness to let some balls drop.
  • One of our tools [ on CareGiving.com ] are @Atul_Gawande-inspired checklists to help patients and caregivers self-advocate and navigate the HC system

T5: Where do caregivers go for support? Do you connect with other caregivers? What are some helpful resources for caregivers?
  • Support groups. Knowing you are not alone.
  • Remind caregivers (and patients) that therapy can be a powerful space for supporting health.
  • Churches, temples, PTA moms, Teachers doctor's nurses, social workers in hospital 
  • Just as you receive support, know you have wisdom and insights that benefit others, too

Please scroll down for Resources shared during the chat. You may continue our Caregiver conversation on Smart Patients at https://www.smartpatients.com/gyncsm.

Be sure to join us on Wednesday, February 10, 2016 at 9pmET for our discussion on Rarer GYN Cancers : Fallopian and Vulvar. February 29th is Rare Disease Day around the world - Learn more at www.rarediseaseday.org

Dee
#gyncsm Co-Moderator


RESOURCES

 Cancer.Net webpages Caring for a Loved One 

@AmericanCancer - https://t.co/qmtsAiCLRo

Ring Theory - http://articles.latimes.com/2013/apr/07/opinion/la-oe-0407-silk-ring-theory-20130407

Facing Life with #ovariancancer for Caregivers @OCRF https://t.co/xyQJ8FxIXI

Coping with Cancer – For Family and Friends  @theNCI https://t.co/UlSzLz70vX

Helpful Tips for Supporting the cancer patient's long-distance caregiver @ONAcom https://t.co/VNKrcLJ3OY

Cancer Caregivers Support | Don't Do It Alone!!! | @SHAREing https://t.co/tSL4C9gLg1

Support for Caregivers of Cancer Patients: Transition After Active Treatment @AACR https://t.co/XdK3NNUGnG

6 vital things for caregivers via @savor_health blog https://t.co/j0HRL9ksl6

Providing friendship, understanding & support 4 kids/teens who have a parent w/ cancer #gyncsm https://t.co/LdtHYLlFBQ

Resource | Caregiver support groups, workshops, article from @CancerCare   https://t.co/ktuWjIR3MU 

Video - Role of the Caregiver 
http://www.curetoday.com/cureconnections/videos/a-cancer-journey-the-role-of-the-caregiver

@CancerSupportCm Cancer Support Community tips 
http://www.cancersupportcommunity.org/MainMenu/Family-Friends/Caregiving/Tips-for-Caregivers.html 

Sharing their pain http://www.curetoday.com/publications/cure/2015/spring2015/caregiver-challenge-sharing-their-pain 

Time management for caregivers 
http://www.curetoday.com/publications/cure/2015/Summer-2015/time-management-techniques-for-caregivers

General caregiving resources through @caregiving @carenovatemag @CaregiverAlly @NA4Caregiving @CaregiverAction

Help for Caregivers: Burnout, Stress, Resources Coping with Loss & So Much More!

Caring for the Caregiver - @CancerAdvocacy Cancer Survival Toolbox® Special Topics
                            

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Supplements / Vitamins Are they helpful? May 8, 2019 Chat

We were pleased to have Stacy Kennedy MPH,RD (@stacykennedyrd) join us for this informative chat on vitamins and supplements.  You may find ...