Showing posts with label support. Show all posts
Showing posts with label support. Show all posts

Wednesday, 12 September 2018

September Chat : We Need Support, Where Do We Find It? and Digital Health Fair

This month we decided to hold a chat and digital health fair around the topic of Support for gynecologic cancer patients. We started with a few topic questions about what support gynecologic  cancer patients need and then our health fair began. Organizations that support gynecologic cancer patients were invited to share a few tweets about the organizations and services they provide. Thank you Cancer and Careers, Cancer Hope Network, Clearity Foundation, Elixir Fund, FORCE, Helpsy, IamCervivor, OCRFA, Proactive Genes, SHARE, SPBOC Foundation, Smart Patients, Support Connection and WhatNext for making our first Digital/Virtual Health Fair such a success.

We were pleased that 61 people participated in this chat with 2.7 million impressions and 658 tweets. You may learn more analytics here.

Some responses to our topic questions include:
T1: What are the types of support patients need at diagnosis, during treatment and after? What is most important for you, your loved one or those you support?
  • At first I see a big need to not feel alone. Also a competing desire to learn all you can but also not wanting to overwhelm yourself.
  • As many facets as there are in our lives, each of them requires support as cancer touches everything.
  • I wished I had someone to navigate and to research for me when first diagnosed. I've been that person to many others. I needed a "me" for me.
  • Knowledge is power here. Patients are in need of education and supportive resources
  • Support that includes caregivers and family members so they can better support their loved one.
T2: For emotional support, do you attend in-person groups, online groups, one-on-one? Why or why not?
  • A combination of support is helpful for different needs.
  • There is a benefit to each type of support program and it depends on the person's personality what they're comfortable with. Many orgs, incl. us, offer a variety of support programs so that people can find the best fit.
  • online Facebook group only. Once a month at hospital hasn't been convenient.
  • All of them. Talking to a person who has gone through it gives you different support than taking part in in-person groups.

Then we moved on to our Digital Health Fair.  

Here are a few tweets from each participating organization. You may find and follow each organization on Twitter or on the internet.  Please refer to the transcript for additional tweets and information from each participant. 

Cancer and Careers

Cancer Hope Network


Clearity Foundation


Elixir Fund 




FORCE

Helpsy



IamCervivor



OCRFA




Proactive Genes
SHARE



SBPOC



Smart Patients


Support Connection

WhatNext 


We also celebrated our 5th anniversary as a chat and Twitter community.



Remember if you are a patient or caregiver you may continue this discussion on the Smart Patients Platform ( https://www.smartpatients.com/gyncsm ). 

Join us next month on October 10, 2018 at 9pm when we chat about Managing Cancer Pain. 

See you then, 

Dee

at No comments:
Labels: , , , , , ,

Saturday, 8 September 2018

Sept. 12, 2018 Chat: We Need Support , Where Do We Find It?



This month, on Wednesday, September 12th at 9:00pm ET, the #GYNcsm community will be hosting our first ever "digital health fair" in conjunction with our chat topic We Need Support, Where Do We Find It?. We will begin the chat with a few questions about the needs of women and caregivers diagnosed with a gynecologic cancer and what resources they have found helpful, then our "digital health fair" will begin. The organizations taking part will share a few tweets on the services they provide and participants can ask questions.

To date the following groups will be joining us:

Cancer Hope Network

Imerman Angels

Smart Patients

SHARE

Cervivor

Helpsy Health

Elixir Fund

OCRFA

FORCE

If you are an organization that supports women diagnosed or at risk for a gynecologic cancer and would like to participate in our chat please tweet/DM to @gyncsm your interest in participating or e-mail us at gyncsm@gmail.com so we can add you to our list.

We are also excited that this month is our 5th Anniversary as a Twitter Community. We would not have been able to continue our mission to support those whose lives have been impacted by a gyn cancer without all your help. Our sincerest Thank You!



See you on the 12th!

Dee and Christina 
Co-founders #gyncsm 

at No comments:
Labels: , , , , ,

Wednesday, 10 January 2018

January 10, 2018 Chat: Caregivers Wants and Needs



Happy New Year!

We were pleased to have Lauren Hand (@LCooperHand) a Gynecologic Oncology Fellow at Magee-Womens Hospital of University of Pittsburg Medical Center and investigator on "The Essential Elements of Caregiver Support in Gynecologic Oncology", join us as our guest for this month's chat.

Forty-six participants joined us as we discussed #carepartners and #caregiver needs and wants. You may find additional analytics here.

We asked six questions and have included some responses to those questions below. For the complete transcript please visit Symplur.

T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear?
  • Caregivers need to make time to care for themselves mentally and physically and they need to accept help from others
  • I'd tell providers that caregivers suffer the same level of burnout that physicians experience & that it should a consideration when designing a care plan
  • T1: 1. Importance of self care. 2. See number 1.
  • #Carepartners need access to information for care coordination. What forms/permissions need to be granted to allow carepartners to consistently speak on patients behalf & engage w/ care team.
T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role?
  • T2: Be sure you have a HIPAA clearance in place so you can get your person's medical info and give input to the doctor when the patient cannot or does not.
  • A2: It is essential to have your own support system. Seek out a support group and/or a professional therapist to address your own feelings and struggles. If people offer help, take it. You do not have to do it all and you shouldn’t
  • T2: That any decision your patient and you make is the right decision for now, regardless of how it turns out. We can't see the future. Jump on the horse and ride it!
  • Caregiving is one of the hardest roles ever. Important for caregivers to make time for themselves, allow help, ASK for help.
T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need?
  • T3 I’m my biggest barrier. I feel no one will give my loved one the care that I will because I love them
  • Barriers to accessing and utilizing support services are often rooted in lack of awareness of what is available or that they even exist, financial concerns, and time. Additionally, many caregivers place personal/internal pressure on themselves to do it all. 
  • The biggest barriers are realization that caregivers need help themselves. Actually finding and tapping into resources is also tough
  • Speaking from a tech side, interoperability deficits keep patients and caregivers from connecting the dots of their care & support. Access is a peculiar thing when communication is an obstacle
T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources?
  • my hospital offers a caregiver support group, but my husband never went. Too busy, inconvenient time of day. 
  • caregivers in US and Canada can reach out to @cancerhopenet to be matched to support volunteers who are caregivers. 
  • my cancer dx and tx propelled us to finally find a spiritual home in joining a church. Not exactly caregiver support, but we can’t do this living and needing alone 
  • @Smartpatients is good for helping caregivers, patients, and concerned friends get up to speed with all the terminology involved in disease and care. No question is too small or too large. 
  • T-4 There has only been one local resource which was found late after my dx, not used. However, multiple online resources were utilized: @teaminspire was one. I also helped start a FB group called Friends and Family just for this purpose.
T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.?
  • none of the above. It was all found via personal online searching. Great reason for office liaisons
  • I heard about Caregiver resources from my cancer center's social worker.
  • It was not easy! I found out about local resources through online searches and some support groups post their information in the local paper. Word of mouth/friends can be a good resource, as well as the hospitals in the area.
T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important?
  • I think some online modules or TELhealth style for quick consults could be helpful in taking time when you find that free 15min 
  • Include a 24/7 support line when you need someone available to talk through the difficult times.
  • I'd love to see #carepartners be able to reach out to another #caregiver at the same cancer center to help navigate the maze of paperwork , tests, insurance, scheduling. Every center has their own routine, requirements
  • You know, even basics, like a list of the grocery stores in the area that do Click and Ship and help setting up - practical things
  • Honestly, I think it should be multifaceted. Not every patient/caregiver responds in same way. I would make sure KIDS were an area of focus. I may also divide care by severity of disease at this can greatly impact the level of necessary care
  • I would like a caregiver support group that addresses the needs of younger families/caregivers. This includes better and more flexible scheduling. My particular area lacks non-English speaking support groups, which leaves a lot of people without resources.
T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together?
A complete list of resources shared during the chat may be found below. 

The Essential Elements of Caregiver Support in Gynecologic Oncology project:
If you are a caregiver of or a patient with gyn cancer interested in sharing more ideas about caregiving in a formal survey you are invited to participate in an online survey. Participation would involve 2-3 hours of your time through online surveys. Please contact (Lauren Hand) at handlc@upmc.edu.

Continue this conversation by joining us on the Smart Patients platform  (https://www.smartpatients.com/partners/gyncsm).

The February #gyncsm chat topic will be "Let’s Talk - Communication" focusing on patient-doctor communication.

We hope to see you then.

Dee
#gyncsm Co-founder

RESOURCES
@cancerhopenet Cancer Hope Network

@CancerSupportHQ Cancer Support Community https://www.cancersupportcommunity.org/caregivers

@Smartpatients Smart Patients Caregivers Group

@CancerDotNet Cancer.net

@SHAREing SHARE Caregiver Support https://www.sharecancersupport.org/caregivers-support/

@theNCI https://www.cancer.gov/resources-for/caregivers

@AmericanCancer American Cancer Society https://www.cancer.org/treatment/caregivers.html

@livestrong LIVESTRONG https://www.livestrong.org/we-can-help/caregiver-support

@CancerCare Caregiver resource page https://www.cancercare.org/tagged/caregiving

@ASCO Cancer.net international patients caregiver info https://www.cancer.net/coping-with-cancer/finding-support-and-information/international-patient-information


Family Caregiver Alliance https://t.co/6FgV2vrN3N (800) 445-8106

at No comments:
Labels: , , , , , ,

Friday, 5 January 2018

January '18 Chat: Supporting Caregiver Wants and Needs

Happy New Year to our community!



We will begin a new year of chats on Wednesday, January 10, 2018 with a discussion on Supporting Caregiver Wants and Needs. Our guest will be Lauren Hand, (@LCooperHand) a Gynecologic Oncology Fellow at Magee-Womens Hospital of University of Pittsburg Medical Center. Ms Hand is an investigator on The Essential Elements of Caregiver Support in Gynecologic Oncology, a project through the University of Pittsburgh. The goals of the project are to identify the unmet needs of family caregivers, summarize the current state of practice of supporting caregivers, and propose a set of essential and actionable elements to be included in any caregiver support program in gynecologic cancer.

The questions that we will use to guide are discussion are:

T1: What are the top two things you would tell healthcare providers about the needs of caregivers that you think they need to hear?

T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role?

T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need?

T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources?
T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.?

T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important?

T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together?

You may want to check out Cancer.net's pages on Caregivers Taking Care of Themselves:
https://www.cancer.net/coping-with-cancer/caring-loved-one/caregivers-taking-care-themselves

We look forward to chatting with you on Wednesday. 

Dee and Christina 
Founders Gyncsm
at No comments:
Labels: , , , , , ,

Wednesday, 8 February 2017

HPV and Cervical Cancer Chat - 2/8/17

During this month's chat discussion on HPV and Cervical Cancer the community learned vital information about screening, vaccination, fertility and how to better educate women on the risks and treatment of cervical cancer. We were joined by forty-nine participants and had over 2.4 million impressions.

Here is a sample of the responses to our topic questions.
T1: Which HPV (Human Papilloma Virus) types cause cervical cancer? How does the HPV vaccination prevent cancer? 
  • HPV causes nearly all cases of cervical cancer. While there are over 150 HPV types, ~14 are known to cause cervical cancer.
  • Usually HPV 16 and 18. But several others. Vaccine prevent against many cancer and wart causing types of HPV
  • Just because you are infected with #HPV - doesn't mean that you will DEFINITELY develop #cervicalcancer
  • Because we can't be sure who will develop cancer - best to PREVENT with #HPVaccine
  • It is also important to note that the HPV infection can develop years after exposure
  • @theNCI comprehensive cancer ctrs statement on HPV vaccination tinyurl.com/je8tujx

T2: What other health issues and cancers are associated with HPV? Why is the vaccine recommended for both boys and girls?
  • @GYNcancer :vaccinate both girls & boys between 11- 13 years. 2 doses . Vacc + screening prevent virtually all CervCa
  • Other HPV-related cancers include: vagina, vulva, penis, anus, rectum, and oropharynx (cancers of the back of the throat) 
  • As of 10/2016, CDC recommends that 11-12 year-olds receive 2 doses of HPV vaccine at least 6 months apart instead of 3
  • Cigarette smoking and conditions that lower the immune system like steroids [increase risk]
  • Cervical dysplasia (not yet cancer) can be as emotionally and mentally taxing for young women
  • The best time to vaccinate is well before any sexual skin to skin contact. 

T3: What are the tools we have to catch cervical cancer in the pre-cancer and early stages? What do we need to know re: guidelines? 
  •  If there is concern based on pap and/or HPV test, then colposcopy (a closer look) is done in office.
  •  HPV test should be first test for cervical cancer screening. Detects 14 high-risk HPV types. via @US_FDA
  • Continued importance of pap/HPV screening based on ASCCP guidelines--this and vaccination best way to protect 
  • ACOG infographic on screening acog.org/Patients/FAQs/…
  •  Imp- Guidelines are based on average risk and should be starting point of discussion with your doctor about your personal risk!
T4: What are options for fertility preservation? What fertility and general resources can help women diagnosed with cervical disease? 

T5: There is still a lot of stigma surrounding women's cancers. How can we ensure ALL women receive the necessary education.

  • Take stigma off of HPV as a "sexually transmitted" disease and change to "human contact" 
  • Keep talking about it until it's not a stigma - it's just a health condition to treat!
  • Recent news @NewsHour @DrJenCaudle #cervical cancer kills more african american women http://www.pbs.org/newshour/bb/cervical-cancer-killing-many-african-american-women-thought/ 
  • Australia has implemented school-based vaccination w/ success in vaccine rates and decreased disease
  • It would help if our education about bodies included penis, vagina, ovaries, testes, etc as consistently as we say "elbow."
  • More education programs in junior high and high schools. School vaccination programs 
  • Celebrities with cervical cancer diagnosis speaking out 
  • Organizations like American Indian Cancer Foundation americanindiancancer.org/cervical help educate and raise awareness
  • Organizations like @iamcervivor work to share stories - stories touch emotions and emotion leads to actions
  • Cancer treatment is far worse than the "stigma" of people knowing you're sexually active




Please scroll down for additional resources. To read the entire transcript please click here.

Remember that patients and caregivers are invited to continue our #gyncsm discussions on the Smart Patients platform at https://www.smartpatients.com/partners/gyncsm  .

We invite you to join us next month, Wednesday, March 8, 2017 at 9pm ET for our chat on Gyn Cancer Disparities. 

See you next month! And please use the #gyncsm hashtag to share important information with our community.

Dee
Co-Founder #gyncsm

RESOURCES

@GYNCancer HPV Facts and testing http://www.foundationforwomenscancer.org/educational-materials/cervical-cancer-edmaterials/

@CDCgov has info and resources about #HPV available at     https://www.cdc.gov/hpv/parents/whatishpv.html

ASCCP guidelines available for public http://www.asccp.org/asccp-guidelines

SGO webpage about HPV with good resources sgo.org/hpv/

FDA Resource - Improving odds of cervical health fda.gov/forconsumers/c…

Fertility Preservation in Patients With Cervical Cancer | Cancer Network  http://www.cancernetwork.com/oncology-journal/fertility-preservation-patients-cervical-cancer

#cervicalcancer rates and disparities nytimes.com/2017/01/23/hea…

Time Magazine : Cervical Cancer Rates http://time.com/4643570/cervical-cancer-death-rates-study/

HPV vaccine: A smart way to protect kids from cancer  https://www.mdanderson.org/publications/cancerwise/2013/06/hpv-vaccine-a-smart-way-to-protect-kids-from-cancer.html

How to Talk to Your Kids about HPV https://www.mdanderson.org/publications/focused-on-health/january-2017/HPV-vaccine-talk-to-your-kids.html

Treatments for cervical cell changes: cancer.gov/types/cervical…

Who should be vaccinated against #HPV, and when? Tips from our Dr. Haddad: http://blog.dana-farber.org/insight/2017/01/who-should-get-the-hpv-vaccine/  

at No comments:
Labels: , , , , ,

Friday, 3 February 2017

Feb. 8, 2017 HPV and Cervical Cancer Chat


While January is officially Cervical Health Month, we're going to continue sharing information and discussing HPV (Human Papilloma Virus), the HPV vaccination, and cervical cancer treatment and survivorship right into February - and beyond.

Cervical cancer forms in the cells lining the cervix. It generally takes several years for normal cells to develop into cervical cancer. The Pap test detects those precancerous cells and the HPV test detects the presence of high-risk HPV types known to lead to cervical cancer.

The most recent numbers available on the incidence of cervical cancer in the U.S. is from 2013. In that year, 11,955 women were diagnosed with cervical cancer (CDC ). The five-year survival rate is 68%. Over the past forty years, death due to cervical cancer has dropped by more than 50% due to the use of the Pap test (http://www.cancer.net/cancer-types/cervical-cancer/statistics).

HPV is responsible for nearly all cases of cervical cancer, with HPV 16 and 18 accounting for more than seventy percent of all cervical cancers. HPV is a very common virus that is transmitted by skin-to-skin contact. Many HPV infections go away by themselves but when they persist they can lead to cervical cancer. Other cancers also associated with HPV include cancer of the vagina, vulva, penis, anus, rectum, and oropharynx (cancers of the back of the throat, including the base of the tongue and tonsils). The goal of vaccination is to prevent a lasting HPV infection after a person is exposed to the virus. (http://www.cancer.net/navigating-cancer-care/prevention-and-healthy-living/hpv-and-cancer)

We hope you will join us and learn more about cervical cancer.

We will use these questions to guide our chat:

T1: Which HPV (Human Papilloma Virus) types cause cervical cancer? How does the HPV vaccination prevent cancer? 

T2: What other health issues and cancers are associated with HPV? Why is the vaccine recommended for both boys and girls?

T3: What are the tools we have to catch cervical cancer in the pre-cancer and early stages? What do we need to know re: guidelines? 

T4: What are options for fertility preservation? What fertility and general resources can help women diagnosed with cervical disease? 

T5: There is still a lot of stigma surrounding women's cancers. How can we ensure ALL women receive the necessary education.

Feel free to read the Cancer.Net website (http://www.cancer.net/cancer-types/cervical-cancer/introduction) and the CDC website (https://www.cdc.gov/cancer/hpv/statistics/cases.htm) for more information on cervical cancer and HPV.

See you on Wed the 8th!

Dee
#gyncsm Co-Founder


at No comments:
Labels: , , , , , ,

Wednesday, 11 May 2016

May 11, 2016 Getting Social with your Health #gyncsm Chat

We were delighted to welcome John Novack (@teaminspire) from Inspire (www.inspire.com) to this month's Getting Social with your Health chat. John is a former longtime healthcare reporter/editor and served as a board member and officer of the Association of Health Care Journalists. Inspire serves as an online patient support community for over 100 patient advocacy organizations and their members, including the Ovarian Cancer National Alliance and the National Cervical Cancer Coalition. Inspire creates and manages health condition specific support groups for over 750,000 patients and caregivers.

We had 37 participants during the night's chat and over 2.9 million impressions.  You may find analytics here.

You can get a taste of our discussion below. For all responses, please read the full transcript here.

T1: What social media (SM) outlets do you turn to for info about GYN cancers / your health? What's been helpful?

  • I like Twitter and LinkedIn for sharing on info on GYN cancers and survivorship in general.
  • IMO Twitter is the best SM outlet for info. Advocates, medical profs use Twitter more, great way to connect to experts.     
  • Our sense is that people find multiple resources news or community, & hone in eventually on what works for their needs.
  • only shortcoming with #some is there is bad info mixed with good and pts often don't know how to tell the difference                         

T2: Do you share your own health journey on social media (SM)? Why or why not? If yes, how did you decide which outlets?

  • I often use our family's cancer journey or my learnings for patients journeys in published writings. too long for social media
  • Writing is my catharsis, & sharing stories helps others in similar situs know they're not alone.
  • Yes, on all SM platforms. Talk a lot about being a #Previvor, #Lynchsyndrome #Oophorectomy, and #HereditaryCancer. Write a lot.
  • I share my journey on SM to advocate. I was more private when early stage due to career concerns.  
  • YES - Started w/ ACOR , then on my blog , Twitter, Facebook groups, @inspire, @smart_patients

T3a: Why do you join online patient groups? Join multiple? What info were you 1st seeking? (treatment, trials, side-effects, etc)

  • I join online patient groups (like #gyncsm) to support the spread of solid healthcare information and to keep current on patient needs.
  • I started with cancer chat on AOL to help my husband, then got into the deep stuff with ACOR and continued it on Smart Patients.
  • many seek to know aren't alone, hear from long-term survivors, find hope - also the practical, day-to-day tips
  • Initially for support, got frustrated -- don't find them helpful or supportive
  • One thing it's good for is debunking the miracle cures because people have developed trust in their groupmates

T3b: What topics do you value most? (mental health, sexuality, support, etc.) Why are people taking these online vs. other options?​

  • In our @OCNA group, top topics treatment, recurrence, and side effects.
  • In our @StopHPVCancer group, the top topics are cervical precancer, treatment, & early detection.
  • Emotional support component is key. When #OvarianCancer group refers to "teal sisters," the deep connections are clear.
  • there is only so much that can be covered in the oncologist/doctors office. so much to learn beyond and ppl help you process 
  • Terms & acronyms of particular cancers intimidate many newly diagnosed. Good online groups allow for “dumb questions.”
  • Online support communities: Cuz between doc appointments, we have a lot of living to do

T4: What advice would you share about seeking health info and support on social media/patient communities? What are some cautions?

  • There are so many great resources online. But you need to be a critical consumer. Check for moderation, sales agenda, etc.
  • My advice:Listen, but don't make behavioral changes based on Internet advice. Check with Doctor first.
  • be wary of "miracle" cures & treatments. Even well-meaning folks can promulgate dicey stuff in the name of giving hope
  • Same evaluation required as for any website: trustworthy source/sponsor, credible, timely, relevant.
  • For us, strong online communities have self-regulation, but with an openness in tone and in content. Can be tough balance. 
  •  read the “about” page and if there isn’t an “about” page, or easy way to make contact, could be a problem.
  • I seem to hear the most issues w/ facebook groups. A platform that meets ppl where they are but not always strong moderation 

T5a: How have you benefited from getting social w/ your health - publicly and/or in patient groups? Does it impact your decisions?
  • I'm on a journey to becoming a more engaged, empowered patient and getting social w/ my health has helped me and inspired me.
  • Finding a group of folks who understand at a personal level how to navigate the cancer journey. The actual day to day stuff 
  • My decision to get social has made me a better clinician. I can really hear what people need and adjust my care.
  •  Advocacy via SM gives me a sense of purpose. 
  • Meeting other amazing advocates, learning about treatments etc from “twiends” who are gyn oncs and researchers
  • Yes, practical concerns like how to deal with side effects - patients and caregivers share good tips.

T5b: How have you benefited by participation in the #gyncsm community? How can we increase participation by those diagnosed w/ gyn cancers? 

  • The biggest benefits are in the community itself. Learning from each other.
  • make sure patients know "what's in it for them" when using your services. You have good stuff! #Flaunt it :)
  • I learn about great advocacy tools and current research--such a gift.
  • Twitter communities like #gyncsm bring together so many varied perspectives into one conversation. Invaluable to me.
  • Providing an atmosphere where our new gyn cancer members feel heard--not judged--is crucial.

Please see our resource section below for articles on the use of social media by patients and physicians.

Do you want to join in the conversation or continue to discuss this topic? Join us on Smart Patients at https://www.smartpatients.com/gyncsm

Thank you, John Novack, for joining us and sharing your insights on social media and your online support communities.

We hope you all will join us on Wednesday June 8, 2016 at 9pm ET as we chat about What's New in GYN Cancer Research. 


Dee
Co-moderator #gyncsm chat

Resources:

Social Media in Oncology: Does It Help Patients? http://www.medscape.com/viewarticle/862558

Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey
http://www.jmir.org/2015/7/e188/

Disease Specific Hashtags for Communication about Healthcare
http://www.slideshare.net/subatomicdoc/disease-specific-hashtags-for-communication-about-cancer-care-48866106

Twitter Responds: Reactions to Patients Tweeting about Their Cancer - https://connection.asco.org/commentary/twitter-responds-reactions-patients-tweeting-about-their-cancer

Virtual Patient Communities Engendering A New Social Health Era
https://www.powerfulpatients.org/2015/11/03/virtual-patient-communities/

How do we know that social media is important to health care? 
http://e-patients.net/archives/2013/10/how-do-we-know-that-social-media-is-important-to-health-care.html

e-Patients in Twitter Hashtag Communities 
http://www.jopm.org/perspective/narratives/2013/05/29/e-patients-in-twitter-hashtag-communities

Practical Guidance: The Use of Social Media In Oncology Practice
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3439237/

Understanding Users Motivation to Share Health Information on Facebook -Thesis
https://open.library.ubc.ca/cIRcle/collections/ubctheses/24/items/1.0228654

A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication 
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3636326/





at No comments:
Labels: , , , , , ,
Subscribe to: Posts (Atom)

Supplements / Vitamins Are they helpful? May 8, 2019 Chat

We were pleased to have Stacy Kennedy MPH,RD (@stacykennedyrd) join us for this informative chat on vitamins and supplements.  You may find ...