In the past our community has chatted about advocating for yourself and others and about being a gyn cancer advocate. This month on Wednesday, December 14 at 9pmET (8pmCT/6pmPT) we would like to extend the advocacy topic to include how those impacted by a gynecologic cancer can become involved in cancer research and become a research advocate.
Our guest this month will be Elda Railey (@RANAdvocate) from Research Advocacy Network (RAN). You can read more about Elda, a founder of RAN, here.
We invite all those who are already research advocates and all those who want to learn about getting involved with research and becoming a research advocate to join the discussion, which will be guided by these topic questions:
T1: Beyond enrolling in clinical trials, what are some of the ways people can get involved with cancer research?
T2: How can patients and advocates keep up with research? What resources are out there to help us better understand the science?
T3: What does being a "research advocate" involve? How has this role changed as overall patient influence has grown?
T4: How can people start to get involved with grant review, clinical trials design, research dissemination, and/or conferences?
T5: What are some tips when it comes to reaching out to Congress about cancer research? What has shown to be effective?
In addition to the resources found on the Research Advocacy Network site you may also visit the AACR website's page on Becoming a Advocate for Medical Research.
We look forward to seeing you on the 14th for our final chat of 2016.
Dee and Christina
Co-founders #gyncsm Community
Showing posts with label gyn cancer. Show all posts
Showing posts with label gyn cancer. Show all posts
Thursday, 8 December 2016
Thursday, 17 November 2016
Our Community - 2016 Survey Results
During September and early October we conducted a #gyncsm community survey. We were so pleased that 84 individuals took our survey. This is up from 37 respondents who completed our 2014 #gyncsm survey. We very much appreciate those who took the time to share their ideas and recommendations. Below are some highlights of the results.
The majority of survey respondents were Gynecologic Cancer Patient / Survivors (70.0%) followed by High Risk Individual or Advocate / Previvor (12.5%), Health Care Provider (11.25%), Caregiver / Loved One of a gynecologic cancer patient / survivor (10%) and lastly Cancer Researcher (5%).
The patient / survivor breakdown was:
We were interested in how followers interacted with the #gyncsm hashtag, chats and community. 43% of the respondents read the chat blog posts, 43% retweeted using the hashtag, 36% took part in a chat, 38% tweeted using #gyncsm, and 27% read a chat transcript. Less than 10% of the respondents joined us on Smart Patients platform. When asked specifically about our blog site, we found that 50% of the respondents visited our blog.
We asked which of the topics covered over the past three years were most important and these were the top five topics for survey respondents:
When asked how they used the information from #gyncsm chats after the chat, the top response was advocating for themselves or others (58%). Also of note, 29% took part in an online support group and used a resource found in our blog posts.
When we asked how we can better help the community and what topics we should discuss, here's some of what we learned:
We also asked respondents to share their thoughts on our #gyncsm chat/community and how it has has impacted their attitude toward their own health. Some of the things we heard are that #gyncsm provided:
Lastly we wanted to know how individuals find out about #gyncsm. Respondents found us via:
Thank you to all who took this survey and for your continued support. We are using the information from the survey as we make our plans for next year. Remember if you have any other comments or concerns feel free to reach out to gyncsm@gmail.com.
Dee
#gyncsm Co-founder
The majority of survey respondents were Gynecologic Cancer Patient / Survivors (70.0%) followed by High Risk Individual or Advocate / Previvor (12.5%), Health Care Provider (11.25%), Caregiver / Loved One of a gynecologic cancer patient / survivor (10%) and lastly Cancer Researcher (5%).
The patient / survivor breakdown was:
- 46.8% ovarian
- 34.3% endometrial/uterine
- 14.0% cervical
- 8% fallopian, primary peritoneal, vulvar or GTD
- 0% vaginal
- 7.8% breast
We were interested in how followers interacted with the #gyncsm hashtag, chats and community. 43% of the respondents read the chat blog posts, 43% retweeted using the hashtag, 36% took part in a chat, 38% tweeted using #gyncsm, and 27% read a chat transcript. Less than 10% of the respondents joined us on Smart Patients platform. When asked specifically about our blog site, we found that 50% of the respondents visited our blog.
We asked which of the topics covered over the past three years were most important and these were the top five topics for survey respondents:
- Survivorship
- Advocacy
- Side Effects
- Personalized Medicine
- Clinical Trials and Support
When asked how they used the information from #gyncsm chats after the chat, the top response was advocating for themselves or others (58%). Also of note, 29% took part in an online support group and used a resource found in our blog posts.
When we asked how we can better help the community and what topics we should discuss, here's some of what we learned:
- Sometimes the time is either too early or too late.
- Sometimes the chat is too quick for a meaningful discussion.
- We should highlight other gyn cancers - endometrial/uterine, cervical were mentioned in particular. Continue to talk about clinical trials and genetics.
- Talk about health care disparities and outcomes for women of color.
- Talk about dealing with grief from the loss of friends.
- Talk about sexuality after treatment.
- Talk about what is important to younger patients.
We also asked respondents to share their thoughts on our #gyncsm chat/community and how it has has impacted their attitude toward their own health. Some of the things we heard are that #gyncsm provided:
- Hope.
- Made me feel part of the community.
- Encouraged me to take more ownership in my own preventive health and advocacy for others.
- Appreciate the range of resources offered.
- Feel more empowered, less alone.
- Led me to follow up more on some of my side effects and secondary challenges.
- Wish #gyncsm could be leveraged into a new non-profit for all GYN cancers.
- I felt like I was alone... there were no support groups near me. #gyncsm made me feel a part of a community.
- It is challenging for the hashtag to cover both advocacy/activism AND patient/survivor support - this is a common problem with other disease hashtags.
- There needs to be more equal support for other cancers.
Lastly we wanted to know how individuals find out about #gyncsm. Respondents found us via:
- Other cancer chats
- Dee's Blog
- From a friend
- Researching cancer
- Followed @btrfly12
- NED twitter handle
- Randomly found the #gyncsm chat
- Smart Patients
Thank you to all who took this survey and for your continued support. We are using the information from the survey as we make our plans for next year. Remember if you have any other comments or concerns feel free to reach out to gyncsm@gmail.com.
Dee
#gyncsm Co-founder
Thursday, 1 September 2016
Awareness and Advocacy - Sept Round-up
Awareness months are a wonderful opportunity to build momentum around a health cause. Here are lots of resources and information about the great things you can get involved with for Gynecologic Cancer Awareness Month and Ovarian Cancer Awareness Month. We'll add to this post as the month goes along. You can also check out our RESOURCES section for overall and cancer-specific organizations and resources that are helpful year-round.
Gynecologic Cancer Awareness Month
Foundation for Women's Cancer- Campaign homepage: http://www.foundationforwomenscancer.org/gcam2016/ Note - Here you will find great graphics to share highlighting each of the main gyn cancers.
- SGO counterpart page: https://www.sgo.org/social-media/social-media-gcam/
- Main Hashtags: #EndWomensCancer #sharethepurplelove
- Other Hashtags: #gyncancer #GCAM
- Main Hashtags: #gcam #gyncsm #preventcc
- Campaign homepage: http://www.nccc-online.org/gynecological-cancer-awareness-month/
- The Eve Appeal, Jo's Trust
- Main Hashtags: #GynaeMonth #knowyourbody
Places to Find Personal Stories:
Gynecologic and Ovarian Cancer Symptom Images to Share:
Ovarian Cancer Awareness Month
Presidential Proclamation - National Ovarian Cancer Awareness Month, 2016http://go.wh.gov/ZkDRGY
Foundation for Women's Cancer
- Campaign homepage: http://www.foundationforwomenscancer.org/gcam2016/ Note - Here you will find great graphics to share for ovarian cancer.
- Main Hashtags: #TealTuesday #sharetheteallove
- Partner Member Events: http://www.ovariancancer.org/2016/08/03/september-partner-member-events/
- Main Hashtag: #30daysofteal
- Campaign homepage: http://www.ovarian.org/knowovarian Note - has links to all their run/walks.
- Main Hashtags: #knowovarian
- Main Hashtags: #TealTuesday #ovariancancer #gyncsm
- #WearTealDay - Fri 9/2, Annual event on the first Friday of September
- #OCAMChat - Tues 9/6 5:30pmET
- CancerCare Webinar on Medical Update on Ovarian Cancer - Wed 9/7 1:30pmET
- #HERchat w/ @beBRCAware @ShannonWestin - Thur 9/8 7pmET
- Ovarian101 Thunderclap - Sat 9/10, Join the campaign by 9/9
- SHARE Webinar on Strategies for Long-Term Management of Recurrent Ovarian Cancer - Thur 9/15 12pmET
- SupportConnect Webinar on Clinical Trials and Ovarian Cancer - Thur 9/15 8pmET
- Ovarian Cancer SU2C Dream Team Update Webinar - Thur 9/22 6pmET
Hereditary Breast and Ovarian Cancer Week (9/25-10/1) and Previvor Day (9/28)
FORCEChristina Lizaso
co-founder #gyncsm
Monday, 13 April 2015
Survivor's Story: GTD and Me – A Story of Diligence, Persistence, and Grace
During the recent tweet chat (#CancerFilm) which took place during the viewing of the documentary the Emperor of All Maladies, Christina conversed with Katie Smith, who was diagnosed with GTD (Gestational Trophoblastic Disease). Gestational trophoblastic disease (GTD) is defined by the National Cancer Institute (NCI) as a group of rare diseases in which abnormal trophoblast cells grow inside the uterus after conception. Trophoblast cells help to connect the embryo to the uterine wall and help to form the placenta. GTD, in most cases, is benign but some cases may be malignant and spread to nearby organs. Please see the NCI site for additional information. We are pleased to have Katie share her story with our community.
I was 28 years old in the winter of 2005. I had a beautiful one year old son that my husband and I had waited on for almost four years, a new job, and was excited about possibly having more children in the future. Little did I know my world was about to be turned upside down.
- Katie Smith ( @katielizsmith)
Thank you so much Katie for sharing your story with us.
Dee #gyncsm co-moderator
GTD and Me
A Story of Diligence, Persistence, and Grace
I was 28 years old in the winter of 2005. I had a beautiful one year old son that my husband and I had waited on for almost four years, a new job, and was excited about possibly having more children in the future. Little did I know my world was about to be turned upside down.After having my son, my monthly menstrual cycles became quite painful. But, I just attributed it to getting older. I also began having a thick discharge, but attributed it to post nasal drip (I have horrible allergies and thought that was the culprit). In February 2005, I went to the doctor about the painful periods and an ultrasound was performed. The doctor saw something in my uterus, but stated it was a fibroid. Traditionally, fibroids can cause intense periods so this made sense. I was sent home.
The next month, I noticed that my “pregnancy nose” had returned. You know – that ability to smell someone eating a cheeseburger in the neighboring town. At that point, I got a little scared. While I wanted more children, I wasn’t prepared to have one now. When I took a home pregnancy test, it showed faintly positive. So, off to my OB/GYN doc I went.
The blood pregnancy test indicated that I had been pregnant but had a miscarriage. This was devastating! According to the doctor, my HCG levels were low which indicated that there may still be remnants in the fallopian tubes. I was given a very light dose of Methotrexate to help flush out any remaining items. I was again sent home, but was asked to come back in a couple of days for another HCG level check.
But, when I came back a couple of days later, my HCG levels were starting to creep up. I was asked to come back in two more days for another check. This went on for about 1 ½ months (including a stronger dose of Methotrexate thrown in there). For some reason, my levels would not go down. At this point, my OB/GYN doctor became concerned. She said, “I really don’t think this is cancer, but I want you to go see my doctor. He is a Gynecological Oncologist who can rule out cancer and figure out what this is.”
Dr. Don Hall, the Gynecological Oncologist, immediately sent me for an ultrasound. The Ultrasound Tech stated, “I see a fibroid in there. That’s it.” But, Dr. Hall had a feeling that this was more than just a fibroid. After multiple urine and blood tests, along with a PET scan, the diagnosis was found. While all of this was going on, I became engrossed in finding out what this could be. I stumbled across a Gynecological Disease website and found something called “Gestational Trophoblastic Disease”. The symptoms sounded like the ones I had been experiencing. Could it really be cancer?
It was a Friday afternoon and I was called in for my results. With my mother on one side of me and my husband on the other, Dr. Hall delivered the news. I had a Placental Site Trophoblastic Tumor, which is in the GTD family of cancers. Less than ½ of 1 percent of women have this type of tumor, and it forms where the placenta attaches to the uterus. He had already scheduled my hysterectomy for the following Wednesday. I would be in the hospital for 3 days and on leave for 6 weeks minimum. I would have a long scar starting from my belly button down, and they may have to remove part of my intestine. The PET scan had indicated the tumor had protruded through the uterus and was wrapped in the intestine.
Part of me was relieved to have a diagnosis but the other part of me was terrified. In addition, our insurance was completely maxed out (this was in the day of annual maximum amounts and before the ACA). We would have to pay for the entire surgery and any other treatments that I would have to go through. Funny enough-I didn’t worry about the money part. I just wanted to be alive to see my son grow up.
When Dr. Hall went in to do the surgery, he discovered that the tumor had not protruded but was fully contained in the uterus. It was removed and sent off for growth rate testing. If the growth rate was low, no further treatment would be necessary. If the growth rate was high, I would have to take chemotherapy and radiation. In addition, it was discovered I had really bad endometriosis and one of my ovaries was removed because it was badly damaged.
The results of the growth rate testing showed that the tumor was growing at a slow rate. However, I had to come back every month for HCG testing. Each time I went it, I would get very anxious. I had ghost symptoms constantly and stayed panicked. But, the first year went by with no increase in HCG. In July 2015, I will be 10 years cancer free.
There is a very slight chance it could recur as lung cancer, with an even slighter chance of breast cancer occurrence. But, thanks to God, the concern of my OB/GYN doctor Rebecca Walker and the diligence and persistence of Dr. Hall, I’ve been able to experience 11 years of bliss with my son.
What can you take from this story: Listen to your body. It will tell you when something is wrong. If something is wrong, don’t blow it off. Have it checked out – it might just save your life.
Thursday, 16 October 2014
We Asked & You Answered
Thank you to everyone who completed our survey. Thirty-seven people from survivors to researchers to gynecologic oncologists completed the survey. Please note, you could skip questions so not all questions were answered by all 37 people.
The number of respondents who were patients or survivors was 54% which is similar to the percentage of patients / survivors who participate in the monthly chat. We also heard from caregivers (2.7%) , and advocates ( 10%) . Twenty-four percent of the respondents were healthcare providers and five percent were cancer researchers. We did have a few individuals who were survivors / caregivers of other cancers who also took the survey.
Of the patients / survivors who took part in the survey, a majority of them had been diagnosed with ovarian cancer while we had three cervical cancer patients and three endometrial cancer patients complete the survey.
Health care providers who filled out the survey were predominantly gynecologic oncologists, radiation oncologists, and nurses but we also had one peer-to-peer support person and a health reporter participate.
When we asked you why you took part in the chat, we learned that many of you joined us to learn and because the topics were interesting. You also joined us to meet other community members, to provide support and to share advice. A number of the respondents joined us to share knowledge to improve the quality of care of women diagnosed with these diseases.
We asked you which topics (Sept 2013 -2014) you found most important. Based on the average rating the top 5 topics were:
- Advocating for Yourself and Others
- Ovarian Cancer Awareness
- Clinical Trials
- Fertility and Sexuality
- Caregiver Family issues
Then we provided a list of topics for 2015 and asked you which ones you felt were most important. The top 5 topics are:
- Dealing With Long and Short Term Side Effects
- Personalized Medicine
- Dealing with a Recurrence
- Dealing with Anxiety
- What I wish I knew Before Treatment
In the next question we provided some areas in which you could use what you learned in the chat. Many people used or shared the resources mentioned in the chat or on our blog, advocated for yourself and others, and made changes in your personal or professional practice.
When we asked you how we could improve the community, you told us to
promote our blog more and to increase how many patients participate in the chat. One person suggested we reach out to cancer centers to post about the chat. You also asked for the questions in advanced so you could be bettered prepared. We started doing that for the October chat and will continue to do so.
We asked you how often you participated in our chat. Ten of you had not participated in the chat at all. Seventeen respondents took part 1-5 times and 6 took part between 6 and 13 times.
We saw similar results when we asked you how frequently you visited our blog, with eight people having never visited the blog. Fourteen visited from 1-6 times. And five people reported that they visited the blog 10+ times.
Some other important things shared:
You were happy that your non-professional voice was heard.
You asked to have a spot in a blog to share your blogs. (We do have links to resources and the major gyn cancer organizations on our blog. )
Some were a bit uncomfortable in the company of physicians. (We hope our new partnership with Smart Patients will allow you to feel better connecting with your peers. Be sure to register at https://www.smartpatients.com/gyncsm to continue discussing our chat topics.)
We also heard from one person that we provided “fuzzy” information. We apologize if we are not communicating in the best way for you to understand the information. Please contact us via e-mail ( gyncsm@gmail.com ) with any issues you may have.
We appreciate the feedback you have provided and will use it to plan our 2015 chat topic list and as a guide as we grow our community.
Thank you!
Christina Lizaso
Dee Sparacio
#gyncsm Co-moderators
Sunday, 28 September 2014
Looking back at a year of #gyncsm chat Today I Learned's
At the end of each #gyncsm chat, we call on participants to share closing thoughts using TIL, standing for "Today I Learned". I really enjoyed looking back through them all and below are a selection of my favorites from this past year of monthly chats.
Want more? You can find the running list of TILs from each chat HERE.
Want more? You can find the running list of TILs from each chat HERE.
TIL: A new way to connect and share with a community of people living with, advocating for and caring for GYN cancers! awesome! @eberrygynonc
TIL: connections in person or online can impact and empower. @joannerash
TIL: again how important it is to ask questions and be your own health advocate. @staunchstudio
TIL: We all have so much to share w/ each other and each conversation helps us all connect better @gyncsm
Proud of the amazing conversation at #gyncsm tonight. We need to spread GOOD info on gyno cancers. #LetsDoThis. @girlmeetsgeek
that cancer is an umbrella of diseases under which we can all stand TOGETHER and support all! @chemobrainfog
TIL that there’s a website for EVERYTHING! And that I’m not alone in my clinical trials frustrations. @cookifit
TIL (again): There are so many very powerful voices working to decrease stigma and connect those in need of support. @drbeckerschutte
#gyncsm chat is a lifesaver. Its amazing to get opportunities to talk with fellow survivors & professionals freely. Thank you for this! @cookifit
TIL that there are fierce advocates for those with #cervca and that there is HOPE. @brownbeansprout
TIL how much I love the #gyncsm chats and the people it brings together. @cloudhealth
TIL: different viewpoints on clinical trials. Good to see things from a different perspective. Thanks everyone at #gyncsm! @eberrygynonc
TIL that we can learn from each other No need to re-create the wheel! BTW I used TIL as closure when I was teaching 5th grade @myelomateacher
TIL: caregiving + family issues can be as complex as the clinical issues. It's a team effort @rzeiger
Brilliant TIL: impt that clinicians recognize cancer is social dz. Stop, ask how the loved ones are doing. @gfry
cancer is hard for everyone. Patient, caregiver.Partner & children. No right or wrong. Just be a loving unit is my final thought @brcainfo
TIL: Reminded there is power in knowing you are not alone in whatever you are facing and that others are there for you. @btrfly12
TIL continual imptce of being ur own advocate:key to survival and NEGU (never ever giving up) @jtriestm
TIL GYNCSM is a diverse body with many different and wonderful suggestions to approach the same issue. @journeycancer
TIL that despite all SHE's facing, my wife still has love and patience when I'M upset, and maybe I should be more OK with showing it @simpson1290
TIL so happy I was able to participate tonight, you all are amazing and I'm so grateful to have this forum, take care :) @rose_mzrozee
TIL: too many to list...great advice/sharing from great people! #endcancer @natedahlpharmd
TIL - we have a huge opportunity to educate our gyn ca providers to address sexuality and fertility issues early and often @shannonwestin
Cancer needs a multi-dimensional approach with a muti-disciplinary team covering multiple issues. A challenge but can be overcome! @giasison
TIL once again, patients need to be their own health advocates. Never assume. Ask questions. Explore all options @jbbc
"For the secret of the care of the patient is in caring for the patient." Francis Peabody <-- the whole patient @subatomicdoc
Til - there are wonderful hcp and patients exchanging ideas and touching on topics that rarely get discussed #gyncsm thanks everyone @natricer
appreciate greatly everyone sharing an hr to educate, inform & support those with cancer. & related issues - so thrilled to peek in! @natricer
TIL important for patients and providers alike to use coping mechanisms and ask for help @shannonwestin
TIL I'm not alone in my fear of recurrence. Knowledge is power. Staying connected even after treatment is important. @intakeme
TIL: Integrated whole person care is essential in all disease communities. @drbeckerschutte
TIL: being an advocate is important. Everyone can do something & make a difference in another persons life. I will never stop doing! @brcainfo
TIL Those on #gyncsm can change the status quo. #communities are more important than ribbons... or ice buckets. @drdonsdizon
TIL: There are so many ways to advocate for yourself and others - don't be afraid to ask questions and find the right MD for you @shannonwestin
This year I learned: people in the gyn cancer community could find each other and come together to support and educate each other @womenofteal
TIL: The best learnings come from sharings of what each & every one of us go through. And for that I'm forever grateful. @giasison
TIL: @gyncsm has been a great resource for gynecologic cancer advocacy for a solid year. Happy anniversary! @drmarkham
Thanks for the great chat everyone! A very happy anniversary #gyncsm! Together, we can make a difference. @globeathon
TIL: connections in person or online can impact and empower. @joannerash
TIL: again how important it is to ask questions and be your own health advocate. @staunchstudio
TIL: We all have so much to share w/ each other and each conversation helps us all connect better @gyncsm
Proud of the amazing conversation at #gyncsm tonight. We need to spread GOOD info on gyno cancers. #LetsDoThis. @girlmeetsgeek
that cancer is an umbrella of diseases under which we can all stand TOGETHER and support all! @chemobrainfog
TIL that there’s a website for EVERYTHING! And that I’m not alone in my clinical trials frustrations. @cookifit
TIL (again): There are so many very powerful voices working to decrease stigma and connect those in need of support. @drbeckerschutte
#gyncsm chat is a lifesaver. Its amazing to get opportunities to talk with fellow survivors & professionals freely. Thank you for this! @cookifit
TIL that there are fierce advocates for those with #cervca and that there is HOPE. @brownbeansprout
TIL how much I love the #gyncsm chats and the people it brings together. @cloudhealth
TIL: different viewpoints on clinical trials. Good to see things from a different perspective. Thanks everyone at #gyncsm! @eberrygynonc
TIL that we can learn from each other No need to re-create the wheel! BTW I used TIL as closure when I was teaching 5th grade @myelomateacher
TIL: caregiving + family issues can be as complex as the clinical issues. It's a team effort @rzeiger
Brilliant TIL: impt that clinicians recognize cancer is social dz. Stop, ask how the loved ones are doing. @gfry
cancer is hard for everyone. Patient, caregiver.Partner & children. No right or wrong. Just be a loving unit is my final thought @brcainfo
TIL: Reminded there is power in knowing you are not alone in whatever you are facing and that others are there for you. @btrfly12
TIL GYNCSM is a diverse body with many different and wonderful suggestions to approach the same issue. @journeycancer
TIL that despite all SHE's facing, my wife still has love and patience when I'M upset, and maybe I should be more OK with showing it @simpson1290
TIL so happy I was able to participate tonight, you all are amazing and I'm so grateful to have this forum, take care :) @rose_mzrozee
TIL: too many to list...great advice/sharing from great people! #endcancer @natedahlpharmd
TIL - we have a huge opportunity to educate our gyn ca providers to address sexuality and fertility issues early and often @shannonwestin
Cancer needs a multi-dimensional approach with a muti-disciplinary team covering multiple issues. A challenge but can be overcome! @giasison
TIL once again, patients need to be their own health advocates. Never assume. Ask questions. Explore all options @jbbc
"For the secret of the care of the patient is in caring for the patient." Francis Peabody <-- the whole patient @subatomicdoc
Til - there are wonderful hcp and patients exchanging ideas and touching on topics that rarely get discussed #gyncsm thanks everyone @natricer
appreciate greatly everyone sharing an hr to educate, inform & support those with cancer. & related issues - so thrilled to peek in! @natricer
TIL important for patients and providers alike to use coping mechanisms and ask for help @shannonwestin
TIL I'm not alone in my fear of recurrence. Knowledge is power. Staying connected even after treatment is important. @intakeme
TIL: Integrated whole person care is essential in all disease communities. @drbeckerschutte
TIL: being an advocate is important. Everyone can do something & make a difference in another persons life. I will never stop doing! @brcainfo
TIL Those on #gyncsm can change the status quo. #communities are more important than ribbons... or ice buckets. @drdonsdizon
TIL: There are so many ways to advocate for yourself and others - don't be afraid to ask questions and find the right MD for you @shannonwestin
This year I learned: people in the gyn cancer community could find each other and come together to support and educate each other @womenofteal
TIL: The best learnings come from sharings of what each & every one of us go through. And for that I'm forever grateful. @giasison
TIL: @gyncsm has been a great resource for gynecologic cancer advocacy for a solid year. Happy anniversary! @drmarkham
Thanks for the great chat everyone! A very happy anniversary #gyncsm! Together, we can make a difference. @globeathon
I'm excited for another year of sharing and learning with #gyncsm.
Christina Lizaso
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