Wednesday, 14 June 2017

Radiation Oncology - What is it? When is it used? June 14, 2017 #gyncsm Chat

We were so pleased to welcome as our guest Dr. Matthew Katz (@subatomicdoc), radiation oncologist. We appreciate the support and guidance Dr. Katz has provided the #gyncsm community over the past three years. Dr. Katz shared information on our topic Radiation Oncology - What is it? When is it used? with our 23 participants. We were also happy to welcome health care providers @temkins, @Sushilberiwal, @embosu, @shereesepubhlth as well as @Peach_Society and a few new individuals to our discussion.

During our one hour chat we shared 312 tweets and made over 2.5 Million impressions. For a complete transcript of this chat please check here and for more analytics please check here.

Below you may read a sampling of the responses to our topic questions.

T1: What is radiation oncology? How does it work to treat cancer?

  • Radiation oncology is a field of medicine dedicated to the use of ionizing radiation to treat disease, mostly cancer.
  • Ionizing radiation means it’s breaking chemical bonds in cells, which can lead to biologic effects.
  • Radiation treatments are high-energy x-rays (or other particles) designed and focused within the body as cancer treatment
  • The purpose of radiation=damage cancer cells so they (a) stop growing and (b) die to either help cure cancer or relieve symptoms

T2: Which gynecologic cancers are treated with radiation therapy? Under what circumstances is radiation therapy recommended?

  • For ovarian cancer, there is little need for radiation in most cases. Large areas (abdomen and pelvis) too broad to treat 
  • Radiation often can be helpful in endometrial/uterine cancers. It may help lower the chance of recurrences after surgery
  • cervix, endometrial , vagina and vulvar cancer
  • For cervical cancer, radiation can help after surgery in selected cases. However, sometimes it can replace surgery too 
  • Often the 'benefit' of radiation in low grade endometrioid uterine cancers is based local recurrence, not survival, benefit

T3: What professionals are involved on the care team for radiation therapy? Who on your team did you find most helpful?

  • To do our job well, radiation oncologists work closely with nurses, radiation therapists, dosimetrists, physicists
  • Yes, medical dosimetrists plan the treatments in the computer software with guidance from docs and physicists
  • Don't forget your gyn oncology colleagues! We always have opinions and often provide concurrent chemo.
  • Never forget importance of administrative staff, nutritionists and others...
  • other folks can help too... Pelvic physical therapist or sexual health specialist

T4a: What are the differences in radiation therapy types for gyn cancer - external, internal, etc.?

  • External radiation is usually an x-ray (photon) treatment from about a meter away, aimed inside the body
  • brachytherapy means 'close treatment'. Goal = rapid dose drop-off within millimeters 
  • Proton therapy is a highly sophisticated version of external beam radiation. Instead of x-rays (light particles) it's protons 
  • Most gynecological cancers treated with photon. Proton may be for reradiation

T4b: Patients/Survivors/Loved Ones: Were the questions you had about radiation therapy answered for you?


T5: What side-effects and risks are associated w/ pelvic radiation? What tips do you have for controlling side effects? 

  • Gyn and radiation oncologists are probably best trained to manage side effects of pelvic radiation.
  • Radiation's effects are limited to the area treated. Much more focused with brachytherapy than EBRT(external beam radiation therapy) 

We hope you will join us next month on July 12, 2017 at 9pm for this year's "What's on your mind? #gyncsm Open Mic Night". Bring your questions about gynecologic cancers, treatment options, concerns about sharing your data, concerns about long term side effects, etc.

Please continue to use #gyncsm when tweeting about news of interest to our community.
See you next month.

Dee
#gyncsm Co-founder

RESOURCES:

NIH - Radiation Therapy and You: Support for People With Cancer  https://www.cancer.gov/publications/patient-education/radiation-therapy-and-you

@cancerdotnet radiation therapy resources for patients  

Mayo clinic: http://www.mayoclinic.org/departments-centers/radiation-oncology/sections/overview/ovc-20188591

American Society for Radiation Oncology 
https://www.astro.org/home/

American Society for Radiation Oncology,  @ASTRO_org

Radiation Oncology

Slide share - Understanding Radiation Oncology

Journal articles: 
Image-based three-dimensional conformal brachytherapy for medically inoperable endometrial carcinoma  https://www.ncbi.nlm.nih.gov/pubmed/25127122

National Cancer Data Base analysis of radiation therapy consolidation modality for cervical cancer: the impact of new technological advancements https://www.ncbi.nlm.nih.gov/pubmed/25216857

Primary radiotherapy for nonsurgically managed Stage I endometrial cancer: Utilization and impact of brachytherapy https://www.ncbi.nlm.nih.gov/pubmed/25600451


MRI-guided high-dose-rate intracavitary brachytherapy for treatment of cervical cancer: the University of Pittsburgh experience https://www.ncbi.nlm.nih.gov/pubmed/25680598

Friday, 9 June 2017

June 14, 2017 Chat: Radiation Oncology - What is it? When is it used?



This month on Wednesday June 14, 2017, the #gyncsm community will be discussing:

Radiation Oncology - What is it? When is it used? 

There are a number of gynecologic cancers where the treatment protocol includes radiation therapy.

We are pleased that #gyncsm community supporter and #gyncsm Tweet Disclaimer author, Dr. Matthew Katz (@subatomicdoc), will be our guest for this important discussion. Dr. Katz is a radiation oncologist with Radiation Oncology Associates, Lowell Massachusetts. He is a contributor to ASCO Connection and co-founder of the radiation oncology journal club, #radonc and @Rad_Nation. He is also Chair of the Massachusetts Medical Society (@MassMedical) Communications Committee.

Our topic questions are:

T1: What is radiation oncology? How does it work to treat cancer?

T2: Which gynecologic cancers are treated with radiation therapy? Under what circumstances is radiation therapy recommended?


T3: What professionals are involved on the care team for radiation therapy? Who on your team did you find most helpful?

T4a: What are the differences in radiation therapy types for gyn cancer - external, internal, etc.?
T4b: Patients/Survivors/Loved Ones: Were the questions you had about radiation therapy answered for you?

T5: What side-effects and risks are associated w/ pelvic radiation? What tips do you have for controlling side effects? 

T6: What are some things a women can do to take care of herself during radiation treatments? Where can women learn more?


To learn more more about radiation therapy prior to our chat, please read Cancer.net's:
Understanding Radiation Therapy
http://www.cancer.net/navigating-cancer-care/how-cancer-treated/radiation-therapy/understanding-radiation-therapy

We look forward to discussing this important topic with our community.

Dee and Christina
#gyncsm Co-founders

Wednesday, 10 May 2017

May 10,2017 Womanhood, Femininity and Cancer

This month the #gyncsm community discussed how cancer-related diagnoses affect a women's perception of her femininity and womanhood.

We were happy to welcome some new participants as well as catch up with our regulars. We had 29 participants and over 1.5 million impressions. You may find a transcript of our chat here and additional analytics here.

The following are the topics questions along with some responses. Resources shared during the chat are listed at the end of the post.

T1: Growing up, what did womanhood and femininity mean for you? How did you relate to these ideas?

  • Womanhood / femininity = watching mom makeup high heels pretty clothes
  • I always liked girly things, but never felt limited as a girl. Math/science were always my favorite. But love a good lipstick!
  • city grandma gave me etiquette books - farm grandma led by example could do anything man could. I was tomboy
  • I was never a traditionally"girly" girl--largely because I associated being a girl with being limited/different rules 

T2: How do patients and loved ones react when they learn female organs (ovaries, tubes, uterus, cervix, etc) may need to be removed?

  • It seems to vary from person to person...some women "want everything out/I don't need these organs" to preferring no/minimal surgery 
  • Even though I was in my late 40's when dx . It saddened me to loose what had nurtured my 2 children
  • I know that I have worked with clients who struggle with losing body parts that are so identified as "female."
  •  I'm more concerned with being around for my kids, but I certainly feel the weight of what body change may mean.

T3: How concerned were you with ideas of womanhood, femininity, and body image as you started treatment? Do patients bring this up?

  •  I was surprised to see so little written outside of the breast cancer space on the topic if femininity and cancer...
  • The very large scar - now that bothered me for a long time. Bothered me more than loosing my hair
  • "Treatment" is so nebulous - always wondering when next shoe will drop.
  • although my husband and I had decided not to have more children, I struggled that the option was taken away from me 

T4: In what ways has your diagnosis impacted your relationships, sexuality and your image as a women? Where do you seek support? 

  • The Hystersisters group has some resources and community for those thrown into menopause.
  • @cancerLGBT http://cancer-network.org/ has good resources including related to HPV, ovarian in lesbian, bi-sexual and transgender
  • I always hope that people facing these choices are getting good mental health support.  

T5: What are some pelvic health resources for those impacted by cancer-related diagnoses?

  • Good resource for some with pelvic radiotherapy side effects, or concerns of them http://www.prda.org.uk/
  • Pelvic physical therapy is something I've only head about recently.
  • Biofeedback PT is commonly used for pelvic floor therapy after childbirth. Impt to find a specially trained therapist
  • one resource is

Patients and caregivers are invited to continue our discussion on the Smart Patients platform at https://www.smartpatients.com/gyncsm.  

We hope you will join us on Wednesday June 14, 2017 at 9:00pmEST as we discuss Radiation Oncology - What is it? When is it used? 

Remember to please tweet things of interest to our community using the #gyncsm hashtag between chats.

See you soon.

Dee

#gyncsm Co-founder


RESOURCES
"Altered Sexuality and Body Image after Gynecological Cancer Treatment: How Can Psychologists Help?"
"Gender Identity Issues in Online Early-stage Gynecological Patient Discussions"
http://marketeching.com/gender-identity-issues-online-early-stage-gynecological-patient-discussions/

"Quality of life and psychosocial adjustment in gynecologic cancer survivors" https://hqlo.biomedcentral.com/articles/10.1186/1477-7525-1-33

"Psychosocial adjustment in gynecologic cancer survivors:longitudinal study risk factors for maladjustment"
http://www.cancernetwork.com/oncology-journal/how-can-we-effectively-address-medical-and-psychological-concerns-survivors-pelvic-malignancies

"Assault on our Womanhood"
http://www.dailymail.co.uk/health/article-440358/Assault-womanhood.html

Susan Gubar's "Living With Cancer" articles touch on femininity-related issues:
https://www.nytimes.com/column/living-with-cancer

"A Letter To My Gynecologist"
http://www.ihavelynchsyndrome.org/letter-gynecologist/#

Blog post | "Redefining Womanhood:. A look back at 365 days cancer free…"
http://www.girlmeetsgeek.com/2014/05/28/redefining-womanhood/

"Cancer Treatment and Pelvic Health" By Elizabeth E. Houser, MD
http://awomanshealth.com/cancer-treatment-and-pelvic-health/

"How Can We Effectively Address the Medical and Psychological Concerns of Survivors of Pelvic Malignancies?"
http://www.cancernetwork.com/oncology-journal/how-can-we-effectively-address-medical-and-psychological-concerns-survivors-pelvic-malignancies

“I Feel Different”: Ovarian Cancer and Sexual Self-Concept “Women's reproductive health”
http://www.tandfonline.com/doi/abs/10.1080/23293691.2017.1276371?scroll=top&needAccess=true&journalCode=uwrh20

Video: "Ask The Doctor: Physically I feel good, but I feel sad."
http://www.hystersisters.com/vb2/videoshow.php?vid=514

"Post-treatment sexual adjustment following cervical and endometrial cancer"
http://onlinelibrary.wiley.com/doi/10.1002/pon.639/full

"Sexuality after gynaecological cancer: A review of the material, intrapsychic, and discursive aspects of treatment on women's sexual-wellbeing"
http://www.maturitas.org/article/S0378-5122(11)00212-X/abstract

"Tackling the Impact of Ovarian Cancer"
http://www.nursinginpractice.com/article/tackling-psychological-impact-ovarian-cancer

Supplements / Vitamins Are they helpful? May 8, 2019 Chat

We were pleased to have Stacy Kennedy MPH,RD (@stacykennedyrd) join us for this informative chat on vitamins and supplements.  You may find ...